The resources that are now available to parents to empower them to make the best decisions in the treatment of their heart warriors has grown significantly in recent years.
However, for many families, it still is not enough. Their children may present particularly complicated anatomies, or perhaps would benefit from new technologies that are only available at certain hospitals.
Further, while where a surgery takes place- the quality of the Operating Room, 24-hour staffing, dedicated Cardiovascular ICU, etc.- does matter, who is actually performing the surgery matters, in our estimation, more.
And thus far, there is no systematic way to identify the best individual surgeon for your child.
OpHeart is working to change that, and is starting with a simple question posed to the right people that gets to the heart of what every parent wants to know- if it were child, where would you go?
Until we can systematize our method, we offer all CHD families access to our network of pediatric cardiac specialists at the nation’s top hospitals, who will review your baby’s case and provide a referral.
Contact Us if you are in need of SOS.
Parents fill out a questionnaire.
Based on the nature of the CCHD and the question, the appropriate doctor will be assigned and will review the questionnaire. Such doctor will:
- be a practicing physician in their specialty area;
- have at least 10 years’ experience; and
- will have at least a certain threshold number of substantially similar cases within the past 12 months as those presented by the parent.
Assigned doctor may request additional information.
Doctor will provide his opinion if he feels he has sufficient information.
The hope and intention is that such service will be offered without cost to members so that it can be accessed by all, regardless of ability to pay, however, a donation would be suggested.
If you would like to see SOS available for the benefit of the CCHD community, please donate here.