Challenges and Dilemmas
February 11 – 15, 2015
http://opheart.org/wp-content/uploads/2015/02/CHOP-Conference-Abstract.pdf
Wednesday, Feb. 11
OPTIONAL PRECONFERENCE #1
The Fetus with Heart Disease
Primer on Cardiac Development: What the Clinician Fetal Cardiologist Needs to Know
Karl Degenhardt, M.D., Ph.D.
Genetics and CHD: What the Clinician Fetal Cardiologist Needs to Know
Elizabeth Goldmuntz, M.D.
The Role of the Nurse Coordinator in Caring for the Fetus with CHD and Its Family
Denise Donaghue, R.N., M.S.N.
Community-based Improvement in Prenatal Detection of Congenital Heart Disease: Challenges and Progress
William N. Evans, M.D.
Technical Elements of the Fetal Echo Examination
Zhiyun Tian, M.D.
Doppler Derived Cardiovascular Flow Patterns in the Normal Fetus and in the Fetus with CHD
Michael D. Puchalski, M.D.
Fetal Arrhythmias: Fast and Slow
Bettina Cuneo, M.D.
Key Points in Prenatal Imaging: TOF, TGA and Truncus Arteriosus
Mary T. Donofrio, M.D.
Key Points in Prenatal Imaging: The Univentricular Heart
Christopher Lindblade, M.D.
CMR and Fetal Cardiovascular Disease: Potential and Promise
Mark Fogel, M.D.
Counseling and Support: The Checklist Approach to Communicating the Presence of Prenatal Congenital Heart Disease
Tara M. Swanson, M.D.
Delivery Room Management of the Newborn with Prenatal Diagnosis of CHD
David Munson, M.D
OPTIONAL PRECONFERENCE #2
Mechanical Circulatory Support in Pediatric and Congenital Heart Disease
Decision Making and Indications: When Is It Time to Consider Mechanical Circulatory Support for the Pediatric Patient?
Joseph Rossano, M.D.
Device Overview: The Berlin Heart Excor
James St. Louis, M.D.
Device Overview: The HeartMate II LVAD
Charles D. Fraser Jr., M.D.
Device Overview: The HeartWare LVAD
Christopher E. Mascio, M.D.
Device Overview: The Syncardia Total Artificial Heart
David Morales, M.D.
What Do I Do Now?: Troubleshooting for Patients on Mechanical Circulatory Support
Tami Rosenthal, M.B.A., C.C.P., L.P., F.P.P.
Extracorporeal Support Management in the Cardiac ICU
Ravi Thiagarajan, M.D., M.P.H.
Anticoagulation and Mechanical Circulatory Support
Leslie Raffini, M.D.
Options for Mechanical Circulatory Support in the Patient with Single Ventricle
J. William Gaynor, M.D.
Mechanical Circulatory Support Simulation: The Cincinnati Experience
Angela Lorts, M.D.
The PUMPkin Trial: What Is It and What Do We Expect to Learn?
William T. Mahle, M.D.
Facilitating Acceptance and Child Adaptation to Mechanical Circulatory Support
Meredith McDonough, M.S., C.C.L.S. IV
Take It Home: Outpatient Mechanical Circulatory Support Care and Management
Kelley Miller, M.S.N., C.R.N.P.
Clinical Scenarios and Open Discussion: Challenges and Dilemmas in Real-life Cases Involving Mechanical Circulatory Support
Faculty Panel
OPTIONAL PRECONFERENCE #3
The Essentials of Neonatal CHD: A Primer for Nurses and Frontline Providers
What Do We Know About the Genetics of CHD?
Elizabeth Goldmuntz, M.D.
Segmental Anatomy of the “Normal Heart”
Paul Weinberg, M.D.
Screening, Diagnosis and Preoperative Assessments
Kathryn M. Dodds, M.S.N., C.R.N.P.-A.C.
Open Heart Surgery, CPB, Circulatory Arrest and Other Mysteries of the OR
Christopher E. Mascio, M.D.
Early Postoperative Management
Roxanne Kirsch, M.D.
The Brain and Neonatal CHD
Daniel Licht, M.D.
ECHO: Effusions, Function, Obstruction, Regurgitation, Thrombus and Holes
David Goldberg, M.D.
What Can the Chest X-ray Show You?
Geoffrey L. Bird, M.D., M.S.I.S.
How to Decipher Cardiac Catheterization Data
Matthew Gillespie, M.D.
Postoperative Arrhythmias: SVT, JET, Heart Block, VT
Michelle Osborn, R.N., M.S.N.
“Tools” to Monitor Cardiac Output or We Have a Problem: ECMO and Mechanical Support in the Neonate with CHD
Maryam Naim, M.D.
Heart Defects: Anatomy and Care
Tetralogy of Fallot
Anatomy/Morphology –
Paul Weinberg, M.D.
Surgery –
John Nigro, M.D.
Postoperative Care and Outcomes –
Dawn Tucker, M.S.N., C.P.N.P.-A.C.
Truncus Arteriosus
Anatomy/Morphology –
Paul Weinberg, M.D.
Surgery –
John Nigro, M.D.
Postoperative Care and Outcomes –
Kathryn M. Dodds, M.S.N., C.R.N.P.-A.C.
Interrupted Aortic Arch Anatomy/Morphology –
Paul Weinberg, M.D.
Surgery –
James E. O’Brien Jr., M.D.
Postoperative Care and Outcomes –
Kristen Sullivan, M.S.N., C.P.N.P.
Complete Common Atrioventricular Canal Defect
Anatomy/Morphology –
Paul Weinberg, M.D.
Surgery – James E. O’Brien Jr., M.D.
Postoperative Care and Outcomes –
Dawn Tucker, M.S.N., C.P.N.P.-A.C.
Transposition of the Great Arteries
Anatomy/Morphology – Paul Weinberg, M.D.
Surgery – John Nigro, M.D.
Postoperative Care and Outcomes –
Kathryn M. Dodds, M.S.N., C.R.N.P.-A.C.
Total Anomalous Pulmonary Venous Return
Anatomy/Morphology –
Paul Weinberg, M.D.
Surgery –
John Nigro, M.D.
Postoperative Care and Outcomes –
Courtney Howell, M.S.N., C.P.N.P.-A.C./P.C.
Tricuspid Atresia
Anatomy/Morphology –
Paul Weinberg, M.D.
Surgery –
James E. O’Brien Jr., M.D.
Postoperative Care and Outcomes –
Kristen Sullivan, M.S.N., C.P.N.P.
Pulmonary Atresia/IVS Anatomy/Morphology –
Paul Weinberg, M.D.
Surgery –
James E. O’Brien Jr., M.D.
Postoperative Care and Outcomes –
Courtney Howell, M.S.N., C.P.N.P.-A.C./P.C.
Critical Coarctation of the Aorta Anatomy/Morphology –
Paul Weinberg, M.D.
Surgery – James E. O’Brien Jr., M.D.
Postoperative Care and Outcomes –
Dawn Tucker, M.S.N., C.P.N.P.-A.C.
HLHS
Anatomy/Morphology –
Paul Weinberg, M.D.
Surgery –
Christopher E. Mascio, M.D.
Postoperative Care and Outcomes –
Kathryn M. Dodds, M.S.N., C.R.N.P.-A.C.
This Is a “Risky” Group of Patients
Kathryn M. Dodds, M.S.N., C.R.N.P.-A.C.
Discharge Planning and Home Monitoring
Courtney Howell, M.S.N., C.P.N.P.-A.C./P.C. Jennifer Shaffer, C.R.N.P.
Neurocardiac Follow-up
Kathleen Mussatto, Ph.D., R.N
Main Conference • Opening Plenary Session
Challenges and Dilemmas
Incorporating the Genetics Revolution into the Framework of Care for Congenital Heart Disease
Elizabeth Goldmuntz, M.D.
The Challenge of the Fetus as a Patient: Can We Optimize Outcomes for Congenital Anomalies if We Begin Care Before Birth?
Jack Rychik, M.D.
Which Comes First: Overeating or Obesity?
David S. Ludwig, M.D., Ph.D.
Historical Challenges in Congenital Heart Surgery and How We Have Overcome: Do We Have Models for the Future?
Thomas L. Spray, M.D.
Is the Era of Shooting for the Moon Over?
Andrew Redington, M.D.
Challenges of the HLHS Journey: Perspective from a Surgeon
Marshall Jacobs, M.D.
Challenges of the HLHS Journey: Perspective from a Patient
Meghan Roswick
Thursday, Feb. 12
Plenary Session II
Heart Failure in the Young
Epidemiology and Cost of Heart Failure in Children
Joseph Rossano, M.D.
Medical Management of Heart Failure in the Young: State-of-the-Art 2015
Paul F. Kantor, M.B.B.Ch., D.C.H., F.R.C.P.(C)
Biomarkers and Pediatric Heart Failure: Is There Value?
Kimberly Y. Lin, M.D.
The Role of Mechanical Circulatory Support for Pediatric Heart Failure
David Morales, M.D.
The Evolving Role of Heart Transplantation in Pediatric Heart Failure
Steven A. Webber, M.B.Ch.B., M.R.C.P.
Pediatric Heart Failure: Why the Nurse Is So Important!
Kelley Miller, M.S.N., C.R.N.P.
CHALLENGES AND DILEMMAS IN PEDIATRIC CARDIAC NURSING
Nursing Challenges in a Cardiac Center: Staffing, Retention and Communicating Change
Linda Goss, M.S.N.
VAD on the Floor and Going Home: Readying Staff and Family
Ashley Patton, B.S.N., R.N.
Where Should the Fetus with CHD Deliver: Algorithms for Decision Making •
Denise Donaghue, R.N., M.S.N.
Challenges and Barriers in Healthcare Innovation and Program Development •
Stephanie Esparza, D.N.P., C.P.N.P.-P.C.
Building a Cardiac Research Program
Kathleen Mussatto, Ph.D., R.N.
Managing the Adult with CHD in the Pediatric Hospital
Lynda Tobin, M.S.N., C.R.N.P.
Why Is Transition to Adult Care So Hard?
Philip Moons, Ph.D., R.N.
APNs as Frontline Providers in the ICU
Dawn Tucker, M.S.N., C.P.N.P.-A.C
PERFUSION UPDATE 2015
Steroid Use for Cardiopulmonary Bypass: More Harm Than Good?
Molly Dreher, C.C.P., L.P.
Strategies for Implementing and Managing Multiple Mechanical Assist Devices at One Center
Tami Rosenthal, M.B.A., C.C.P., L.P., F.P.P.
ECMO Support: Where We Are Now and Where We Are Heading
Daniel Velez, M.D.
Bloodless Cardiopulmonary Bypass
Dan Gomez, C.C.P., F.P.P.
ECMO/VAD Support: Case Presentation
Roxanne Kirsch, M.D.
HIGHLIGHTED ANOMALY: CORONARY ANOMALIES – THE GREAT DEBATES
Coronary Artery Anomalies: Variability and Significance
Julie Brothers, M.D.
Characterizing and Imaging Coronary Artery Anomalies
Matthew Harris, M.D.
Oxford Style Debate: Clinical Decision Making in Coronary Artery Anomalies Team A: Christopher Caldarone, M.D.; Welton Gersony, M.D. Team B: Marshall Jacobs, M.D.; Silvana Molossi, M.D., Ph.D
CHALLENGES AND DILEMMAS IN CARDIAC CRITICAL CARE: BIG DATA FOR LITTLE HEARTS
The Fickle Promise of Big Data: A Primer to Help See Through the Hype
Geoffrey L. Bird, M.D., M.S.I.S.
Sickbay: The Texas Approach to Predictive Analytics for Physiological Data
Kenneth Brady, M.D.
T3: The Boston/Toronto Approach to Predictive Analytics for Physiological Data
Peter Laussen, M.B.B.S., F.C.I.C.M.
Big Data Between Centers: How the Pediatric Cardiac Critical Care Consortium Is Advancing the Science of Pediatric Cardiac ICU Care
Michael G. Gaies, M.D., M.P.H.
Organizing Care with Clinical Pathways: “Herding Cats” in the Cardiac ICU
Maryam Naim, M.D.
CHALLENGES AND DILEMMAS: THE CARDIAC CATHETERIZATION LABORATORY
The Gore Septal Occluder for Closure of Atrial Septal Defects: Current Outcomes
Matthew Gillespie, M.D.
Transcatheter Pulmonary Valve Therapy: A Critical Evaluation of Current Devices
Doff McElhinney, M.D.
Catheter-based Management of Re-coarctation of the Aorta
Jacqueline Kreutzer, M.D.
Fusion of MRI and Catheter-based Procedures: Is This The Future?
Yoav Dori, M.D., Ph.D.
Occupational Health: Should There Be a Black Box Warning on Interventional Cardiology as a Career?
Jonathan J. Rome, M.D.
Cath Lab Registries and Databases: Pandora’s Box?
Faculty Panel
Pulmonary Valve Replacement in Tetralogy of Fallot: Why, When, How?
Panel: Jonathan J. Rome, M.D. (Leader); Matthew Gillespie, M.D.; Matthew Harris, M.D.; Doff McElhinney, M.D.; Laura Mercer-Rosa, M.D.; Richard Ohye, M.D.; V. Mohan Reddy, M.D.
Plenary Session III
Challenges and Dilemmas in Caring for the Patient with Single Ventricle
Hybrid, Classic Norwood or Norwood RV to PA Conduit for the Neonate with HLHS: How Shall We Decide?
Richard Ohye, M.D.
Interstage Mortality Between HLHS Stage 1 and 2: Can We Make a Difference?
Girish S. Shirali, M.B.B.S., F.A.S.E., F.A.C.C.
Aorto-pulmonary Collateral Vessels: How Important Are They, What to Do About Them, and Do They Make a Difference?
Jonathan J. Rome, M.D.
Understanding Right Ventricular Mechanics in HLHS: From Prenatal Life Through Staged Reconstruction
Nee Scze Khoo, M.B.Ch.B.
The Lymphatic System: Methods for Evaluation, Mapping and Potential Treatment Strategies in the Patient with Single Ventricle
Yoav Dori, M.D., Ph.D.
It’s More Than Just the Heart: End Organ Consequences of the Fontan Circulation
David Goldberg, M.D.
Plenary Session IV
The Borderline Left Ventricle
Anatomical Considerations in the Borderline Left Ventricle
Paul Weinberg, M.D.
Characterizing Adequacy or Inadequacy of the Borderline Left Ventricle: What Tools Can We Use?
Meryl Cohen, M.D.
Aortic Arch Repair in the Newborn with a Borderline Left Ventricle
Charles D. Fraser Jr., M.D.
Predicting (… and Encouraging) a Successful Two-ventricle Repair in the Fetus With Left-sided Heart Disease
Wayne Tworetzky, M.D.
A Strategy for Left Ventricular Rehabilitation: Can We Encourage the Left Ventricle to Develop?
Sitaram Emani, M.D.
Simultaneous Breakout Sessions
CHALLENGES AND DILEMMAS IN HEALTHCARE ADMINISTRATION
Defining the Optimal Relationship Between the Department of Pediatrics and the “Hospital” in 2015 and in The Future
Joseph St. Geme III, M.D.
Integrating a Private Practice Cardiology Group with a Children’s Hospital: The Phoenix Experience
Robert Meyer, President and CEO, Phoenix Children’s Hospital
Use of Physician Extenders and Nurse Practitioners in CHD Care: Cost and Quality
Robert Campbell, M.D.
Development of a Pediatric and Congenital Cardiac Service Line: The Kansas City Experience
James E. O’Brien Jr., M.D.
Getting Ready: Standardized Care Pathways and Impact on Cost
Maryanne Kessel, R.N., M.B.A.
Challenges for the Department Chair of Pediatrics in 2015: Navigating for Excellence
Steven A. Webber, M.B.Ch.B., M.R.C.P
HIGHLIGHTED ANOMALY: TETRALOGY OF FALLOT WITH PULMONARY ATRESIA
Anatomical Features Influencing Management Decisions in Tetralogy of Fallot and Pulmonary Atresia
Paul Weinberg, M.D.
Pre-operative Assessment of Tetralogy of Fallot with Pulmonary Atresia: What Do We Need to Know and How Best Do We Learn It?
Jonathan J. Rome, M.D.
Management Strategy: Single Stage Unifocalization, Stanford Experience
V. Mohan Reddy, M.D.
Management Strategy: Staged Approach, Toronto Experience
Christopher Caldarone, M.D.
Role of Catheter Interventions in Tetralogy of Fallot with Pulmonary Atresia
Jacqueline Kreutzer, M.D.
Outcomes for Tetralogy of Fallot and Pulmonary Atresia
Doff McElhinney, M.D.
CHALLENGES AND DILEMMAS IN NON-INVASIVE IMAGING
M-Mode or 2D Measurements: Who Knows Best?
Girish S. Shirali, M.B.B.S., F.A.S.E., F.A.C.C.
How to Assess LV Non-compaction in Cases with and without Congenital Heart Disease?
Craig E. Fleishman, M.D.
3D MRI Modeling and 3D Printing: The Future of Surgical Planning for CHD?
Mark Fogel, M.D.
Advanced Imaging Techniques to Assess the Atrioventricular Valves in CHD: Is It Just Research or Clinically Useful?
Nee Scze Khoo, M.B.Ch.B.
How Best to Assess RV Function by Echocardiography?
Laura Mercer-Rosa, M.D.
Echocardiographic Screening for Rheumatic Heart Disease in Ugandan Schoolchildren
Craig Sable, M.D.
UNDERSTANDING THE INS AND OUTS OF PACEMAKERS
Understanding Normal Timing Cycles
Mitchell I. Cohen, M.D.
Troubleshooting Pacing Problems
Susan P. Etheridge, M.D.
Troubleshooting Sensing Problems
Andrew Papez, M.D.
CHALLENGES AND DILEMMAS IN SURGERY FOR CHD
Pulmonary Vein Stenosis: From Understanding Pathophysiology to Effective Treatment
Christopher Caldarone, M.D.
Valve-sparing Aortic Root Reconstruction in the Young: Indications, Techniques and Outcomes
James Tweddell, M.D.
Individualizing Surgical Strategies for Repair of Tetralogy of Fallot: Sparing the Pulmonary Valve and Other Techniques
Christopher E. Mascio, M.D.
Current Indications and Techniques for the Ross Procedure in the Young
Thomas L. Spray, M.D.
Congenital Heart Surgery in the Low Birth Weight Infant
James St. Louis, M.D.
Public Reporting of Surgical Results: Is It the Right Thing?
J. William Gaynor, M.D
Simple Lesion or Complex Dilemma?: What to Do About …
Panel: Paul Stephens Jr., M.D. (Leader); Robert Campbell, M.D.; Welton Gersony, M.D.; Stephen Paridon, M.D.; Girish S. Shirali, M.B.B.S., F.A.S.E., F.A.C.C.; Thomas L. Spray, M.D.; Paul Weinberg, M.D.
Plenary Session V
The Problem of Neurocognitive Impairment in CHD
Fetal Brain Growth and Development: Can It Be Modified?
J. William Gaynor, M.D.
Postnatal Developmental Vulnerability and Cerebral Metabolism
Daniel Licht, M.D.
Screening and Assessment for Neurodevelopmental Disorders in CHD
William T. Mahle, M.D.
Theory of Mind and Adolescent Performance Disorders
Johanna Calderon, Ph.D., M.Sc.
Family Stress and Neurodevelopment in the Patient with CHD: From Fetus to Adolescence
Kathleen Mussatto, Ph.D., R.N
Plenary Session VI
Awards and Featured Lectures
13th Annual William J. Rashkind Memorial Lecture in Pediatric Cardiology
Victoria Vetter, M.D.
Introduction: Robert Shaddy, M.D.
15th Annual C. Walton Lillehei Memorial Lecture in Cardiovascular Surgery William J. Brawn, M.D.
Introduction: Thomas L. Spray, M.D.
7th Annual Jack Downes Lecture in Cardiac Anesthesia and Critical Care
George Lister, M.D.
Introduction: James Steven, M.D.
4th Annual Featured Lecture in the Cardiovascular Basic and Translational Sciences
Deepak Srivastava, M.D.
Introduction: Karl Degenhardt, M.D., Ph.D.
15th Annual Featured Lecture in Cardiovascular Nursing: T. Garrett Rauch Memorial Lecture
Nancy A. Rudd, R.N., M.S., A.P.N.P.
Introduction: Kathryn M. Dodds, M.S.N., C.R.N.P.-A.C.
Presentation of the Outstanding Investigator and Nursing Scientist Awards
David Goldberg, M.D.; Kathryn M. Dodds, M.S.N., C.R.N.P.-A.C.
Simultaneous Breakout Sessions
CHALLENGING CASES IN NURSING CARE
Join the nursing faculty in a presentation of challenging cases and dilemmas. What can we learn from the cases that “stump” and “stress” us?
Kathryn M. Dodds; Dawn Tucker; Denise Donaghue; Courtney Howell; Michelle Osborn; Whitney Petrosa; Kelley Miller; Jennifer Shaffer; Kristen Sullivan
AMBULATORY CARE FOR PEDIATRIC AND CONGENITAL HEART DISEASE
The Required Skills for Ambulatory Cardiac Care in the Young: Is Training Necessary?
Jeffrey Boris, M.D.
Outpatient Multidisciplinary Screening for the Patient After Fontan Operation
Kathryn M. Dodds, M.S.N., C.R.N.P.-A.C.
Ethnicity and Prevalence of Congenital Heart Disease
William N. Evans, M.D.
Is There Room for Development of Clinical Pathways in Outpatient Pediatric Cardiology? A View from an Experienced Clinician
Marie Gleason, M.D.
Telemedicine: Utility and Impact in Pediatric Cardiology
Craig Sable, M.D.
Continuous Quality Improvement: Creating the Right Culture in CHD Care
Roy Jedeikin, M.D.
HIGHLIGHTED ANOMALY: CONGENITALLY CORRECTED TRANSPOSITION OF THE GREAT ARTERIES
Anatomical Considerations in Congenitally Corrected TGA
Paul Weinberg, M.D.
Imaging of the Patient with Congenitally Corrected TGA
Craig E. Fleishman, M.D.
Conduction Abnormalities in Congenitally Corrected TGA
Anne M. Dubin, M.D.
Surgical Management Options for Congenitally Corrected TGA
William J. Brawn, M.D.
Intermediate and Long-term Outcomes of Congenitally Corrected TGA
Alan Friedman, M.D
FETAL MATTERS: THE CHALLENGE OF …
Developing a Consensus AHA Statement on Fetal Cardiology: Significance and Implications for Clinical Practice
Mary T. Donofrio, M.D.
The Fetus at Risk for Maternal Autoimmune-induced Heart Block
Bettina Cuneo, M.D.
The Fetus with Ebstein’s Anomaly
Wayne Tworetzky, M.D.
The Fetus with Left Ventricle-Right Ventricle Size Disproportion: Implications for the Neonate and Long-term Outcome
Michael D. Puchalski, M.D.
Cardiovascular Manifestations of Multiple Gestation Pregnancy
Jack Rychik, M.D.
CHALLENGES AND DILEMMAS IN INTRA-OPERATIVE AND PERIOPERATIVE CARE FOR CHD
Can We Use Big Data to Inform on Decisions Concerning Extubation?
Peter Laussen, M.B.B.S., F.C.I.C.M.
Breaking Down the Silos of Medical Education: Providing Optimal Care for Children Requiring Intensive Care
George Lister, M.D.
Current Concepts on Right Ventricle Dysfunction and Future Therapeutic Prospects
Francis McGowan, M.D.
Peri-procedural Risk in the Patient with Pulmonary Hypertension
Aruna Nathan, M.D.
Early Extubation: A Valid Quality Objective or Unnecessary Risk?
James Steven, M.D.
ADVANCES AND MANAGEMENT OF PULMONARY HYPERTENSION IN THE YOUNG
Overview of Pediatric Pulmonary Hypertension: Many Roads, Different Destinations?
Brian D. Hanna, M.D., Ph.D.
Treatment Strategies for Pediatric Pulmonary Hypertension: State-of-the-Art 2015
Dunbar Ivy, M.D.
How Do We Translate Our Understanding of Right Ventricular Failure into Clinical Practice?
Andrew Redington, M.D.
The FK-506 Story: A New Pharmacological Target for Pulmonary Hypertension?
Rachel Hopper, M.D.
How We Engage Industry and Government in Pediatric Pulmonary Hypertension: Recent Failures and Successes
Dunbar Ivy, M.D.
MODERATED PANEL OF EXPERTS
Thrombosis in Pediatric and Congenital Cardiovascular Disease
Panel: Therese Giglia, M.D. (Leader); Peter Laussen, M.B.B.S., F.C.I.C.M.; Daniel Licht, M.D.; Whitney Petrosa, M.S.N., C.P.N.P.-A.C.; Leslie Raffini, M.D.; Ravi Thiagarajan, M.D., M.P.H.; James Tweddell, M.D.
Plenary Session VII
Ethical and Social Dilemmas in Pediatric and Congenital Cardiovascular Care
Dealing with Social Media and Congenital Heart Disease in the Modern Era: Is It Helpful or Hurtful?
Kurt R. Schumacher, M.D., M.S.
Defining Quality of Life in Congenital Heart Disease
Philip Moons, Ph.D., R.N.
Drawing the Boundaries of Care: When Are We Over the Line?
Christopher Feudtner, M.D., Ph.D., M.P.H.
Palliative Care for the Newborn with Complex Congenital Heart Disease
David Munson, M.D.
Daily Ethical Challenges in a Busy Cardiac ICU
Roxanne Kirsch, M.D.
Plenary Session VIII
Challenges and Dilemmas in Adult Congenital Heart Disease
Transitioning from Pediatric Cardiology to Adult Cardiology
Adrienne Kovacs, Ph.D., C.Psych.
The New ACHD Program Accreditation Process and Building the Ideal ACHD Program
Curt Daniels, M.D.
Parenting Styles and Perceived Health in Adolescents with Congenital Heart Disease
Philip Moons, Ph.D., R.N.
Unique Challenges and Dilemmas in Surgery for the Adult with Congenital Heart Disease
Brian Kogon, M.D.
Role of the Nurse Practitioner in Adult Congenital Heart Disease Care
Lynda Tobin, M.S.N., C.R.N.P.
Surgical Management of Aortic Disease — Adult and CHD Perspectives: The Congenital Heart Disease Focused Surgeon
Christopher E. Mascio, M.D.
Surgical Management of Aortic Disease — Adult and CHD Perspectives: The Adult Heart Disease Focused Surgeon
Thor Sundt III, M.D.
Fontan Failure and Liver Fibrosis: Is It Time to Transplant the Liver Together with the Heart? Gruschen Veldtman, M.B.Ch.B., F.R.C.P.
Managing Eisenmenger’s Syndrome
Curt Daniels, M.D.
Discussing Life Expectancy, Advanced Directives, and Palliative Care with Your ACHD Patient
Adrienne Kovacs, Ph.D., C.Psych.
Transcatheter Aortic Valve Replacement and Applications in the ACHD Population
Thor Sundt III, M.D.
Take-home Lessons from the PACES/HRS Expert Consensus Statement on the Recognition and Management of Arrhythmias in Adult Congenital Heart Disease
Maully Shah, M.B.B.S.
Contraception and Pregnancy in Adult Congenital Heart Disease
Yuli Kim, M.D.